Saturday, April 30, 2011

A special thank you.


I wanted to write a quick note, thanking everyone for their patience with the last challenge.  It's been a trying week with Chewie having tonsillitis, hes' been very clingy and feverish and has been planted in my lap for the last 4 days......

but really - if i'm honest, it's been a trying last 6 months.

Those who are new here might not know that i gave birth to our second son 7 weeks early in October.  His online nickname is Artoo.  He's pretty amazing, but we had a rough start - 40 days in the Neonatal Intensive Care Unit and then adjusting to life with 2 kids at home, then a bought of Pneumonia in February...

There's more to it than this.
Artoo has an extremely rare neurological disorder called Moebius Syndrome - it's been something that we have been dealing with; with our close friends and family.  This week we officially "came out" on my home blog (i know, i write another blog... cuz i have so much free time... haha!)

if you're interested in reading it, you can see it here.

i've disabled the comments to that post. 

Anyway, you're all a part of my family now too, so thanks for your understanding.

7 comments:

  1. Laura, thanks for sharing such personal info with us. I've often thought that the universe gives these super special children to super special parents....pairs them up brilliantly, because it knows which ones will nurture and care the most and help them be the very best they can be...and this is another instance that confirms that for me. oh, and his smile is just bloody beautiful. What an enigmatic wee chap he is :) xxx

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  2. Hi Laura,
    I was impressed with how similar our stories are. I have a special child too, she is 1 yr old now and has a kind of cerebral palsy because an umbilical chord malformation (she had chronic hypoxia late in my pregnancy). I have been throught many things you have described, 47 days in the Intensive care unit, fear of the next nurse staff, genetic exam, SRV bronchiolitis infections, a lot of high bills with speech professional, motor therapy, neurologist and so on..oh! And she had a surgery to correct and gastric malformation too!!! Due to all these problems she doesn´t gain weight well and is still a very little baby with only 12lb.
    Well, all I have to say to you is that things are going to be better day by day. Our babies are our treasure and you will be surprised with the things they can teach us! Just wanted to say that you are not alone! Let´s keep firm in the battle for our child! If you want to talk to me, feel free to write me, okay?
    Strenght and Faith Always!!!

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  3. You have given me a gift of gratitude this morning. Graditude that there are people like you and your family in this world. People who take lemons and make them lemonade! People who say nothing is impossible. And yes "Artoo" has a beautiful smile!

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  4. I'm even more impressed with your strength and beauty of spirit, Laura. Those who say he can't smile just don't know how to look for the other signs of a smile. You do. I see it in his eyes, too. He's a beauty, and he's blessed to have such a wonderful family and wonderful care. Thank you for sharing with us. I will keep you and your family in my thoughts and prayers, that he will continue to have the best doctors and that you will have the best support you can get. *hugs*

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  5. Laura,
    After reading your other blog all I can say is, "Wow!" I have only thought that your sweet child is one of the most precious babies I've seen (my own precious "just-turned-1" year old grandson excepted, of course). I am continually amazed by your strength and beauty - both so evident in the space you have created here and the tidbits of your life you have shared in this community. I am so very grateful for all you do to bring beauty and peace to our world. May God continue to richly bless you and your family. You certainly have blessed me.

    Martha M.

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  6. Thank you for trusting us with the knowledge of your precious boys and the challenges tiny Artoo faces, filled with unknowns. He is very precious and beautiful and I cannot imagine that there exist more perfect parents for him than yourself and B-Rad. You love him and delight in him and advocate for him and enjoy him - just as any parent should do for any child. Blessings on all four of you. (And tell Chewie I hope he feels up to another hello to us when his throat is all better).

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  7. I have to say I stand in awe of you and your family! After reading your other blog, I am even more inspired to try to be a better person myself. Your strength is amazing as is your ability to tell your heartfelt story. I just want you to know that you are a very special person and although I will probably never meet you and your beautiful family, I consider it a privilege to be part of your zen family. You will not be far from my thoughts as I attempt to create.

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tangle me some zen, baby!!